• Time to Fly with the Little Guy

    Date: 2014.05.21 | Category: Elijah | Tags:

    Today is the day.

    We are heading to Stanford to get this cute little guy all checked out.

    Eli 1

    Praise the Lord! Elijah has so far avoided getting the cold that Evie has.  These two are always together so it is a major blessing and a major miracle that he has avoided the cold.

    Evie & Eli 1

    We’ve known all along that we would one day see Dr. Hanley at the Lucille Packard Children’s Hospital Stanford.  Almost all the doctors who have heard Eli’s diagnosis have asked us, “Are you going to see Hanley?”  After the third or fourth cardiologist says that to you, you start to pay attention.  Dr. Hanley has had some amazing results in unifocalization.  I won’t even pretend that I understand all of the jargon.  I don’t.  What I do know, in very simple terms, is that Eli is missing the major branches of his pulmonary arteries.  He has lots of collaterals and other connections but the main branches aren’t there.  His actual diagnosis is pulmonary atresia and MAPCAS.

    We will fly today, have his pre-op appointment Thursday and his heart cath on Friday.  Because of the holiday weekend, his surgery isn’t scheduled until the 28th.  We are hoping and praying that the cath shows there is something that can be done.   We are very hopeful and feel blessed that we have this opportunity.


    We have been so lucky with our heart babies so far.  We’ve had wonderful news and blessings beyond measure.  Hoping and praying for the same with the little guy.