• Maisey hearing.

    Date: 2012.04.03 | Category: Benjamin, Maisey | Tags:

    I have a couple of drafts saved that I have been working on that talk about our trip and adoption, but I don’t seem to have a ton of time to just spend on the computer these days. First off, trying to keep everyone happy and fed is a major feat some days. Secondly, Benjamin has been pretty sick and we’ve had numerous doctors visits and lab draws. It turns out his blood work isn’t great and we had to postpone his heart cath until April 18th. His platelets were only 40,000. He bruises very easily and has had many bloody noses. We are trying to get all the blood work done, but they are trying to not make him anemic while doing said blood draws. They think it may be ITP – don’t ask me what it means. I’d just have to Google and copy and paste for you. So we’ll keep it simple and let you Google it. 🙂 It just makes things a smidge more complicated as we try to figure out what to do to make him feel better and to get his sats up.

    Have I mentioned lately how thankful I am for my husband? He has researched everything possible trying to figure out what it could be with Benjamin. He has consulted specialists, spent tons of time on the phone trying to get it figured out. He has reviewed AAP guidelines for international adoptions and what labs need to be done. It just makes me sad for other families who are just left hanging. It has made me think a lot about how this can be fixed. It’s just plain frustrating.

    On a slightly disgusting note, (this will be a TMI for most) I had to do stool samples for the kids. It was a first for me and not something I care to do anytime again. Praises to all the nurses who have to mess with everyone’s bodily fluids way too often in their line of work. No one gives you enough credit I’m sure. My hat is off to you for all that you do to care for your patients.

    But on to what this post is supposed to be about, Maisey hearing. Her actual appointment to get her hearing checked is April 12th. I do hope we get good news at this appointment. We truly do think she can hear some things. She responds differently than what we have been told a deaf baby will do. She says sounds that they usually don’t make and she isn’t monotone. I’m going to attach a video of her with Dan and the guitar. It was wonderful. Not sure if she was truly hearing it, but it seemed like it. It was a good, good day.

    Thanks again for all your prayers for our family and our two new ones. They are truly, truly a blessing. I cannot believe how well they have fit in with our family and how much they love the other kids already. I am truly blessed and grateful every day for the blessing of them in my life.