• God winks….

    Date: 2013.10.31 | Category: Adoption, Benjamin, Thoughts to ponder | Tags:

    While we were in Boston, we met a little girl named Paige. We met Paige while we were waiting in line to get a blood draw.  Her dad had gone to sign her in.  I was ahead of him in this same line. When I came back to where Dan and Ben were sitting, I found my husband chatting with this sweet little girl in a wheelchair. (What many people don’t know about my husband is that he is a sucker for little kids, especially sweet little kids who are ill.)  This little girl was full of personality and smiles.  She told us she gets twice a week blood draws.  She knows what fun picture is on every CT scanner.  Just a little over two weeks ago she had a liver/kidney transplant.  Yet, here she was smiling her huge smile and showing us her Spider-Man shirt complete with webs under her arms. She loved Ben Ben’s Superman cape. She discussed many things.  She had one of the sweetest souls around and a tiny voice full of life and joy. She asked Ben if he had any brothers and sisters and when Dan answered  11, she took a minute and answered “Your house must be really noisy.”  She is wise beyond her years, which was all of 8. Dan stopped to talk to her after Ben’s blood draw and wished her well.

    We walked off and Dan got very quiet.  I asked him what was wrong and he said she is very, very sick. He hadn’t asked the dad what she had but it was easy to see the sadness in her daddy’s eyes and to connect the dots with all she had going on.  I wished I had gotten her full name and address so my children could write to her.  But with the wonder of all that is google I found this picture and some articles on her.  Her family talks over and over again about their faith.  I could see all of their faith and love shining through in this little girl’s face.  She knows she is loved. She knows there is a bigger picture.


    I have seen this over and over again.  Sometimes children who aren’t dealt the fairest cards in life, really truly are wise beyond their years and have sweet, sweet souls.  They have faith that is unwavering.  They see joy in every day life, where we get caught up in the smallest of troubles, that won’t matter a year from now, they stay in the moment and enjoy life. I know this is true because I  have been blessed with many children with just such souls.

    After having gone to China and come home with not one, but many of these souls I would say that blessings abound when you put away your fear and step out and take that first step in faith.  I know that there will be those who call me a Pollyanna. They think I only see the good and walk around with my head in the clouds, but people that say those things are the same people who have never met my children in person.

    Everyone who came in contact with Ben while we were in Boston commented on what a sweet boy he was. You have to remember this was during a very stressful time for him. He doesn’t want to be sick. He doesn’t want to have surgery.  He is afraid and yet he went in to that hospital, dressed in a Superman cape and Spider-Man gloves and treated everyone kindly and with a big heart.


    This same little boy others say wasn’t worth the money spent on his adoption because of his shortened life span, finds joy in everthing.  This boy is a treasure.  He believes in God. He prays every time he hears a siren. He prays for the families of the victims, he prays for the driver and the workers, and he prays for whoever is hurt. This boy is a treasure. This boy is a gift worth more than any small adoption fee. This boy was fading fast in an institution and I wonder how many more souls, that are just like Ben, are there……waiting and waiting and waiting because they have a diagnosis that is out of the perspective families comfort zone.  How many are waiting, just like Jasmine?  How many?

    We were told that there was no fix for Benjamin and while that is true, we learned this week at Boston Children’s Hospital that there is a surgery that we can do to make him pinker and slow down the progression of his pulmonary hypertension. That is wonderful news. Ben will have surgery Thanksgiving week and we will be thankful for a chance at a longer, healthier life.

    I talked to many families in the waiting room at Boston Children’s Hospital. We heard story after story of families  being told there was no hope only to have other families reach out to them and encourage them to get a second opinion.  All of them heard what we heard, there is hope and HOPE is a beautiful thing.

    Boston was very thorough. They were very kind.  Everyone treated Ben very well, so well in fact, that he is okay with going back and having surgery. Steve our nurse for the three days we were admitted, found Ben a Spiderman car to give to him when he came back from his cath. Ben hasn’t wanted surgery, but Ben needs surgery. He is sleeping more, unable to walk very far without sitting down to catch his breathe, just not gaining weight, and dropping his sats in the low 60’s.  He needs this procedure and for him to feel comfortable with going back is a such a blessing to us.

    We are feeling very blessed this week. Everything went well with Ben.  Mom got moved to a skilled nursing home in Fort Dodge where she can get rehab to regain her strength and all her friends and more of her family are closer.  Plus, to top it off we got put in touch with the Muscular Dystrophy Association who are loaning us a power wheelchair for Jasmine to use until things can be worked out with the insurance company.  Jasmine needs her independence and this is one way for her to have it.

    On another note, in an only God could moment, while I was sitting in the pre-op waiting room, I received a message on Facebook from another mom in one of my heart groups on line.  She asked if we were in Boston, from a post I had made asking for Prayers for Ben. It turns out this family recently adopted a little girl from China who was in Boston having surgery that very day. Plus, they live about 20 minutes from us at home AND the adopted another son from China who is hard of hearing AND they homeschool.   You can call it a coincidence if you want but I know it was a Godcidence.  Please keep their daughter, Ruthie, and her family in your prayers. She still has many more days in the hospital and we know what a roller coaster ride that can be.

    Where we were staying, there was a food court attached to the hotel.  Ben loved the noodles at the Asian restaurant. He opened two fortune cookies while we were there and each one said something about “heart”.   One of my Facebook friends called them God winks. I like that!


    Hoping others will step out in faith and adopt more of these special children both domestically and internationally.  People are called to many different places.  Who are we to question what God places on our hearts? Pay attention to the God winks that are all around you. He speaks to our hearts in many, many ways.

    Thank you again for the prayers.  Please keep Ruthie and Paige in your prayers also.

    Keep your heart open to wherever God may be leading.